http://www.loganjackstout.com Logan's Journey will be a long one, diagnosed with Hurler's Syndrome or MPS-1 he will have to go through numerous tests, then chemotherapy followed by a blood transplant. This site is dedicated to track his progress and keep everyone up to date on how he's doing and recovering. Today is the day. Logan will be released from the hospital anywhere from 11 a.m. to 2 p.m. He'll still be on various medicines and have to go to the clinic everyday for a little bit but him being in a home environment not hooked up to an IV pole will be a nice change of pace. http://www.loganjackstout.com Wed, 02 Oct 2008 Road to Recovery Logan's still on track to go home on Thursday. As long as he doesn't need additional blood pressure medicine in addition to all the BP medicine he already gets, he's slated to go home Thursday afternoon. Infact, tomorrow we have to clear out his room and take everything down. http://www.loganjackstout.com Tues, 01 Oct 2008 Road to Recovery On Monday, they drew his blood to see how much of his blood had the donor cells. They tested three specific things geared towards his recovery and the most important thing they were looking at, the T-Cells, were 95% donor cells. http://www.loganjackstout.com Sat, 20 Sept 2008 Road to Recovery His WBC made a jump today after two consecutive days of a pretty dramatic drop. It had originally gone from (basically) 3.0 to 2.0 to 1.0 but now it jumped back up to 2.2. The fluctuation of up and down is pretty common but if it had dropped again to around 0.5 the doctors said they may have been a little concerned about that. http://www.loganjackstout.com Sat, 13 Sept 2008 Road to Recovery Just a reminder that the benefit auction and dinner is taking place Saturday, September 13, 2008, from 1 to 8 p.m. Click her for directions and a final list of what is being donated. http://www.loganjackstout.com/benefit.html Thurs, 11 Sept 2008 Road to Recovery Sorry we haven't written in the last couple of days but it has been pretty busy around here. Mr. Logan has his schedule backwards, so he now sleeps during the day and is awake at night, that is, when he decides to sleep.  http://www.loganjackstout.com Thurs, 11 Sept 2008 Road to Recovery Hey everyone, hope y'all are doing well. Logan thankfully is doing a little bit better everyday. Today he even let Grandma hold him, which was a pretty big deal. He still doesn't play or smile yet, but he's on his way there. http://www.loganjackstout.com Mon, 08 Sept 2008 Road to Recovery According to nurses, Logan has officially engrafted. This means they now believe that he can fight infection on his own and doesn't necessarily need to be in the clean unit anymore. Now, although it's different with every kid, their goal now is to ween him off of his constant medications and look to getting him discharged. http://www.loganjackstout.com Sun, 07 Sept 2008 Road to Recovery His White Blood Count stayed the same today making it the third consecutive day above 0.5 so they are now looking at his ANC. Even better news is that his first ANC count came back at over 500, easily. http://www.loganjackstout.com Fri, 05 Sept 2008 Road to Recovery Meg's taking care of Logan tonight, so I'm doing updates instead. I forgot to grab his reports but his White Blood Count is back to 0.7. http://www.loganjackstout.com Wed, 03 Sept 2008 Road to Recovery Well, Logan is doing about the same today. He is now officially engrafting (making white blood cells) and due to that he has bad bone pain which they say that Tylenol for some strange reason helps more than the heavier stuff. http://www.loganjackstout.com Tues, 02 Sept 2008 Road to Recovery Logan seems to be doing much better. Yesterday was a nightmare - he would cry all the time he was awake, would only calm down when he was in a deep sleep but he would get so irritated that he couldn't get into a deep sleep. http://www.loganjackstout.com MOn, 01 Sept 2008 Life in 5200 Logan is still not doing very well right now. His breathing is very labored still, but not quite as bad as it was yesterday. However, now they're getting concerned about his kidneys. http://www.loganjackstout.com Sat, 30 Aug 2008 Life in 5200 Things have actually made a turn for the better. While he is still on oxygen, he is no longer on the oxygen mask. He has the tube that goes across your face, with two tubes going a little bit into the nostrils. It's still giving him what he needs but it's not one giant contraption across his face, and it moves with him as well. http://www.loganjackstout.com Fri, 29 Aug 2008 Life in 5200 Apparently Logan didn't do well last night. In addition to the fever he was running he also had problems breathing so right now he is connected to an oxygen tube. On the upside, his WBC hit .2 for the first time. http://www.loganjackstout.com Wed, 27 Aug 2008 Life in 5200 Well, today wasn't the best day for Logan. For the most part of the day he was running a low grade fever and cuddled with all of us. As the night progressed his fever spiked to 103 degrees. It got so bad that at one point he was shaking and we had to wrap him up in a blanket to get him warm.  http://www.loganjackstout.com Tues, 26 Aug 2008 Life in 5200 Logan has been doing really well these last two days. They had to up his pain medicine though because he had a painful night on Saturday night. http://www.loganjackstout.com Mon, 25 Aug 2008 Life in 5200 The page detailing the Auction and Benefit dinner has been added including a list of items to be auctioned. http://www.loganjackstout.com Mon, 25 Aug 2008 Web Site updates Three new pictures have been added of him after his haircut. http://www.loganjackstout.com Thurs, 21 Aug 2008 Web Site updates Sorry that I didn't update yesterday, but I had a couple of appointments and that kind of distracted me, and I completely forgot to write a new journal. Since I don't know my way around yet, Dad took me to my appointments while Dave worked and so Grandma watched Logan. http://www.loganjackstout.com Thurs, 21 Aug 2008 Life in 5200 Well, today was pretty much like the last week, Logan is feeling just fine. On the other hand, there was one huge difference today. Today Logan started losing his hair. http://www.loganjackstout.com Tues, 19 Aug 2008 Life in 5200 Logan did really well this weekend. They upped his dose of pain medicine and everything has been going really well. One thing that's different is that he has been sleeping a lot. http://www.loganjackstout.com Mon, 18 Aug 2008 Life in 5200 The video of his transplant and two new pictures are now available. Transplant video is about five minutes long. http://www.loganjackstout.com Sun, 17 Aug 2008 Web Site updates Well, today was the big day, Transplant Day! It went really well, and actually didn't take that long. http://www.loganjackstout.com Fri, 15 Aug 2008 Life in 5200 Nine pictures are up of his transplant. More to come tonight. http://www.loganjackstout.com Fri, 15 Aug 2008 Web Site updates His blood pressure has been kind of high, so he's had to take medicine to bring it back down. That's due to the ATG (immunosupressant) that he's on. This is some wicked stuff. http://www.loganjackstout.com Thurs, 14 Aug 2008 Life in 5200 Logan is doing about the same as yesterday. Last night he got really bad and when we tried to give him some medicine he kept throwing it back up. http://www.loganjackstout.com Wed, 13 Aug 2008 Life in 5200 Ten new pictures have been uploaded. http://www.loganjackstout.com Wed, 13 Aug 2008 Web Site Updates Logan is still the same as it has been lately. He's sleeping quite a bit lately, which for him is not normal. http://www.loganjackstout.com Tues, 12 Aug 2008 Life in 5200 He starting to really have a rough time. For the last couple of days he would only eat baby food, and before that he wouldn't eat anything at all. http://www.loganjackstout.com Sun, 10 Aug 2008 Life in 5200 The audio isues with the videos have been fixed. Additionally, the banner promoting the benefit in Michigan has been spruced up. http://www.loganjackstout.com Sat, 09 Aug 2008 Web site Updates Guestbook has been added, Media page has been added, 18 pictures have been added, navigation menu updated, and two new links for kids with Hurler's. http://www.loganjackstout.com Sat, 09 Aug 2008 Web site Updates Poor Logan had a rough day today. At first it started out okay. He slept through the night, woke up, had a bottle, went back to sleep for an hour, and then played with Mommy on the floor. http://www.loganjackstout.com Fri, 08 Aug 2008 Life in 5200 So, today was the day that I've been dreading since I found out about the treatment, it was his first day of chemo. Thankfully, it wasn't that bad. http://www.loganjackstout.com Wed, 06 Aug 2008 Life in 5200 So, today was THE day, and I have to say it wasn’t too bad. At the beginning of the day though, before we even went into the hospital I was so scared that I could barely breathe, but as we got into the room and met the different nurses things started to get better. http://www.loganjackstout.com Tues, 05 Aug 2008 Life in 5200 This was a pretty good weekend for us. Since Logan is going to be in the hospital for his first birthday we decided to go get his one year pictures taken before we went into the hospital. http://www.loganjackstout.com Mon, 04 Aug 2008 Getting Ready for 5200 Today was a good day for us. Before we got his lines flushed we had the opportunity to look at where we are going to be living. http://www.loganjackstout.com Fri, 01 Aug 2008 Getting Ready for 5200 www.loganjackstout.com